EPDA - European Parkinsons Disease Association

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EUROPEAN PARKINSON'S DISEASE ASSOCIATION

EPDA associated organisations

Association of Physiotherapists in Parkinson's Disease Europe

Association of Physiotherapists in Parkinson's Disease Europe

Résidence Lara
16, rue Boltgen
L-4037 Esch-sur-Alzette
Luxembourg

President: Mariella Graziano

e-mail	info@appde.eu
website	www.appde.eu

The Association of Physiotherapists in Parkinson's Disease Europe (APPDE) is a non-profit making, non-religious and non-political Association for physiotherapists, other professionals, people with Parkinson's and their carers.

Atlantic Euro Mediterranean Academy of Medical Science

Atlantic Euro Mediterranean Academy of Medical Science
c/o Foundation Parkinsonism
22 Al. Stamboliiski Str.
Bg-1000 Sofia
Bulgaria

Founded 1997

President: Prof.Wenzeslav Bossnev MD, PhD, DSc

telephone	+359 2 862 264 808
e-mail	wen.boss3@yahoo.com

The Cure Parkinson's Trust

The Cure Parkinson's Trust
The Vestry
1 St Clement's Court
London
EC4N 7HB
United Kingdom

telephone	+44 (0)20 7929 7656
e-mail	cptinfo@cureparkinsons.org.uk
website	www.cureparkinsons.org.uk

The Cure Parkinson’s Trust is a patient led charity that funds research which will have an impact on the lives of people with Parkinson’s, with the hope of an eventual cure for the condition. The Cure Parkinson’s Trust was founded in 2005 with the clear goal of finding a cure for Parkinson’s disease by investing in under resourced and under funded projects that offer a real hope of a cure in the future. Its primary role is identifying, funding and evaluating research projects, as well as hosting scientific forums to bring together relevant scientists within the field, to discuss key areas of research and technology.

The Trust’s fundraising arm is called ‘Movers and Shakers’, a name adopted by the co-founders.

European Brain Council

European Brain Council
Fondation Universitaire
11 Rue D'Egmont
B-1000 Bruxelles
Belgium

telephone	+32 (0) 2 513 27 57
e-mail	evelyn.sipido@unifi.it
website	www.europeanbraincouncil.org

The European Brain Council (EBC) is a coordinating council formed by European organisations in neurology, neurosurgery, psychiatry, basic brain research (neuroscience), as well as patient organisations and industry. It therefore represents a vast network of patients, doctors and scientists, and these stakeholders along with its industrial partners make it eminently suited to work in close partnership with the European Union commissions, the European Parliament and the World Health Organization (WHO), as well as other decision-making bodies. The EBC was officially founded on 22 March 2002 in Brussels, and has offices in Brussels and Florence.

European Federation of Neurological Associations

European Federation of Neurological Associations
EFNS Branch Office
c/o University of Florence
Dept. of Pharmacology
Viale Pieraccini 6
50139 Florence
Italy

telephone	+39 055 43 62 098
facsimile	+39 055 42 71 280
e-mail	office@efna.net
website	www.efna.net

The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology, including the European Federation of Neurological Societies (EFNS), in what has been termed a "Partnership for Progress".

European Federation of Neurological Societies

European Federation of Neurological Societies
Evelyn Sipido
EFNS Branch Office
c/o University of Florence
Dept. of Pharmacology
Viale Pieraccini 6
50139 Florence
Italy

telephone 1	+39 055 43 62 098
telephone 2	+39 055 42 71 280
facsimile	evelyn.sipido@unifi.it
e-mail	www.efns.org

The European Federation of Neurological Societies (EFNS) is an organisation that unites and supports neurologists across the whole of Europe. The EFNS is based in Vienna, Austria, but have Branch Offices in Florence, Italy, and Prague, Czech Republic. Currently 40 European national neurological societies are registered members of the EFNS. Thus the EFNS represents more than 12.000 European neurologists.

The Movement Disorder Society

The Movement Disorder Society
555 East Wells Street
Suite 1100
Milwaukee
53202 Wisconsin
USA

telephone	+1 414-276-2145
e-mail	info@movementdisorders.org
telephone	www.movementdisorders.org

The Movement Disorder Society (MDS) is an international professional society of clinicians, scientists, and other healthcare professionals, who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic movement disorders, and abnormalities in muscle tone and motor control.

The Movement Disorder Society was founded in 1985 on the initiative of Professors Stanley Fahn and C. David Marsden, whose leadership and vision guided the expansion of clinical expertise and research in this field. The organization merged in 1988 with the International Medical Society for Motor Disturbances.

The National Tremor Foundation

The National Tremor Foundation
Disablement Services Centre
Harold Wood Hospital
Gubbins Lane
Harold Wood
Romford
Essex
RM3 0AR
United Kingdom

telephone	+ 44 (0) 1708 386399
facsimile	+ 44 (0) 01708 378050
e-mail	enquiries@tremor.org.uk
website	www.tremor.org.uk
other	facebook

The International Tremor Foundation (ITF) was founded in 1988 to provide patients and their families with timely, quality information on tremor. The UK branch of the ITF (The National Tremor Foundation) was established in 1992 and was awarded UK charitable status in 1994.

European Patients' Forum

European Patients' Forum
Rue Belliard 65
1040 Brussels
Belgium

telephone	+ 32 2 280 23 34
facsimile	+ 32 2 231 14 47
e-mail	info@eu-patient.eu
website	www.eu-patient.eu

EPF is the umbrella organisation of pan-European patient organisations active in the field of European public health and health advocacy.

EPF was founded in 2003 to become the collective patients’ voice at EU level, manifesting the solidarity, power and unity of the EU patients’ movement. EPF currently represent 44 patients organisations – which are chronic disease specific patient organisations operating at EU level and national coalitions of patients organisations. EPF’s vision is high quality, patient-centred, equitable healthcare for all patients throughout the European Union.

EPF facilitates exchange of good practice and challenging of bad practices on patients’ rights, equitable access to treatment and care, and health-related quality of life between patient organisations at European level and at Member state level.

European Alliance for Access to Safe Medicines

e-mail	enquiries@eaasm.eu
website	www.eaasm.eu

The European Alliance for Access to Safe Medicines (EAASM) is an independent, cross-sector patient safety Alliance campaigning for the exclusion of counterfeit and substandard medicines from the supply chain. Raising public awareness of the issues surrounding counterfeit medicines forms a key part of the activities of the EAASM.

European Medicines Agency

European Medicines Agency
7 Westferry Circus
Canary Wharf
London
E14 4HB
United Kingdom

telephone	+44 (0)20 7418 8400
facsimile	+44 (0)20 7418 8416
e-mail	info@ema.europa.eu
website	www.ema.europa.eu

The European Medicines Agency (EMA) is a decentralised agency of the European Union, located in London. The Agency is responsible for the scientific evaluation of medicines developed by pharmaceutical companies for use in the European Union.

European Neurological Society

European Neurological Society
Peter Merian-Strasse 80
4002 Basel
Switzerland

telephone	+41 61 691 51 11
facsimile	+41 61 686 77 88
e-mail	info@ensinfo.org
website	www.ensinfo.org

The European Neurological Society (ENS) is a society of neurologists whose membership are clinicians and scientists whose interests are directed towards practice, teaching or research in Neurology and cognate fields.

The aims of the society are

to provide continuing education in all fields of neurology
to create a scientific forum for the presentation of original research work for all neurologists
to guarantee a high level of scientific standard
to support the younger generation by continuing promotions such as travel grants, fellowship stipends or the new neurologist in training offer

The ENS was founded in 1986 on the initiative of Gérard Said, Anita Harding and P.K. Thomas, and is modelled after the American Academy of neurology, in which teaching courses at its annual meeting play a prominent role.

European Federation of Pharmaceutical Industries and Associations (EFPIA)

EFPIA Brussels Office
Leopold Plaza Building
Rue du Trône 108
B-1050 Brussels
Belgium

telephone	+32 2 626 25 55
facsimile	+32 2 626 25 66
e-mail	info@efpia.org
website	www.efpia.org

The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe.

EFPIA's mission is to promote pharmaceutical research and development in Europe as well as creating a favourable economic, regulatory and political environment, enabling the research-based pharmaceutical industry to meet the growing healthcare needs and expectations of patients.