Membership Benefits

The EPDA depends on donations, sponsorship and contributions in order to carry out its work.

The membership fee is a contribution to the EPDA to allow us to continue providing a range of resources aimed at people with Parkinson's disease, their families and carers, and health professionals. These include:

Use of the EPDA Logo

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Each member can use a specially designed logo that incorporates 'Member Organisation'
Members may use the EPDA Member Organisation logo on their website or publications to promote their association with the EPDA, free of charge
Where the EPDA logo is to be used in relation to a project, Press release or other documentation, written permission must be obtained from the EPDA before use. In these cases, members are asked to submit a draft of the documents to be used indicating where the logo will be placed and any wording associated with it
Once agreed, EPDA will supply the logo to the organisation with appropriate instructions for use.

Products & Resources

Coping Strategies DVD and website
Parkinson's Awareness Kit and website - www.parkinsonsawareness.eu.com
PD Doc - The EPDA have created an online resource called PD Doc that states “ I have Parkinson's Disease. Please allow me time. In case of an emergency, contact ...” The PD Doc is available on the EPDA website in 25 langaugaes but can also be customised to include EPDA member organisation header for inclusion on member websites
Parkinson's Passport - Designed so that people can complete information about their Parkinson's medication and treatment and carry this with them when out and about or travelling abroad. If a situation arises where you need to describe your condition and the medication you require to someone who may be unfamiliar with Parkinson's, this document will help you to communicate effectively so that they can understand and help you to receive the correct and proper treatment.
Patient Guide to Living with PD and to healthy eating - dedicated website www.epda.eu.com/patientGuide
Tulip Pins - Member organisations may have up to 100 tulip pins per year free of charge.
Websites: www.epda.eu.com, www.rewritetomorrow.eu.com, Medical and Surgical information
These sites are continually being updated with information, validated by the 'experts' i.e. healthcare professionals, PWP and carers
Regular information on European activities that may benefit the organisations and their members

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EPDA Publications

EPDA Plus is one of the tools that provide much needed information about what is happening in the world of Parkinson’s and provides "added value" to our membership. This free of charge 24 page magazine, for healthcare professionals and patient organisations, is published 3 x a year. It has an annual global readership of over 10,000 and circulated widely at the major international congresses such as the MDS, EFNS and WFN. It is also freely available via the internet. Each member organisation receives one complimentary copy.

As from 2010 each edition will be made available via the EPDA website in not only English but also French, German, Italian and Spanish.
EPDA EXTRA – an annual supplement focusing on a specific topic relevant to EPDA and its membership. In 2009 this publication highlighted the need for the EPDA ‘Move for Change’ campaign that involves all the members. In 2010, the specific topic will be lobbying.
Annual Report contains an update on the EPDA’s work programme, projects, networking, European developments, publications, Business Plan and Financial Report
EPDA Media Guide to help organisations plan their media events and liaise with journalists

Members additionally have access to

Free attendance of each PD organisation’s Official (voting member) Delegate at the annual General Assembly meeting, including one or two nights accommodation, all meals, entertainment and delegate papers
The opportunity for each organisation, their membership and Medical Advisory Boards to participate in Quality of life research projects and to benefit from the results such as:
- Participation in Life Survey
- GPD Survey
- INFOpark, a European project looking at the information needs of older disabled people and their carers, and other European projects
- European Young People with Parkinson's Survey
- Occupational Therapy survey
- Real Life, Real PD Survey
- EPDA conferences and to receive educational materials which provide information to PWP, carers and all health and social care professionals to improve quality of life and care.