Who we are

Parkinson’s Europe (“Parkinson’s Europe”, “we, “our” or “us”) is committed to respecting and keeping safe any personal data you share with us. We aim to be clear when we collect your data and not use it in a way that you wouldn’t expect. In particular, we want you to know that we are not in the business of selling, renting or trading email lists with other companies and businesses for marketing purposes.

Developing a better understanding of our supporters through their personal data allows us to make better decisions and ultimately, helps us to reach our vision of ensuring that people with Parkinson’s and their families have access to the highest standards of treatment, support and care they need to live a full and comfortable life. In this Privacy Policy, we’ve provided detailed information about when and why we collect your personal information, how we use it and how we keep it secure.

Changes to this Policy

We may change this Privacy Policy from time to time by updating this page. Please check this page periodically to ensure that you are happy with any changes. If you have any questions, comments or suggestions, please let us know by post – Parkinson’s Europe, Lynwood House, Crofton Road, Orpington, Kent BR6 8QE, United Kingdom, or email info@parkinsonseurope.org.

Privacy Policy

How we collect your information

When you engage or give to us directly

You may give us your information in order to contact us directly, subscribe to a mailing list, sign up to our communications via any of our websites, complete a survey, complete a membership form, make a donation, fundraise for us (for example via The Parky Challenge) or sign up for one of our events. We collect this data only when you have given us your explicit consent. We are responsible for your data at all times.

When you give to us indirectly

Your information may be shared with us by independent event organisers or fundraising sites. These independent third parties will only do so when you have indicated that you wish to support Parkinson’s Europe and with your consent. You should check their Privacy Policies when you provide your information to understand fully how they will process your data.

Through third-party organisations

You may have provided consent to a company or other organisation to share your data with third parties, including charities.

Social media

Depending on your settings or the privacy policies for social media and messaging services like Facebook, Instagram, Twitter or LinkedIn, you might give us your consent to access information from those accounts or services once you choose to follow a Parkinson’s Europe account.

Information available publicly

This may include information found in places such as Companies House, the Charity Commission and information that has been published in articles/newspapers.

When you use our websites

Like most websites, we use “cookies” to help us make our site – and the way you use it – better. Cookies mean that a website will remember you. They are small text files that sites transfer to your device. They make interacting with a website faster and easier – for example by automatically filling your name and address in text fields. There are more details about this in our Cookie Policy below.

The information we collect

Personal data

Personal data is any information that can be used to identify you. For example, it can include information such as your name, date of birth, email address, postal address, telephone number and credit/debit card details, as well as information relating to your health or personal circumstances. We use this data to provide you with the services, products or information you asked for. We will hold this information until you request that we update or delete it.

We may store emails from you to help us better understand your requirements and better serve your needs. Stored emails, messages and letters will only be used internally, within the organisation. If at any time you would like to know what information we hold please contact us.

We will retain your information for as long as it is necessary to fulfill its purposes or until you request that we update or delete it in accordance with our data retention policies and legal obligations under EU GDPR.

Special category data

Data protection law recognises that certain categories of personal information are more sensitive. This is known as special categories, and covers the processing of personal data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, or trade union membership.The processing of genetic data, biometric data for the purpose of uniquely identifying a natural person, data concerning health or data concerning a natural person’s sex life or sexual orientation shall be prohibited. We would only collect sensitive personal information where there is a clear need to do so such as participation in a challenge event, to ascertain what services are relevant to you or to cater other support to you. Before collecting any sensitive personal information from you we will always make it clear to you what sensitive personal data we are collecting and why. We will also ask for your consent to store and retain this data.

Cookies

Cookies are small pieces of text stored as a file on the computer’s hard drive. They are used by your browser and by most websites to help personalise or improve your web experience. They are not computer programmes, and they cannot be executed as code. They cannot be used to disseminate viruses or access the hard drives – a cookie cannot read other information saved on the hard drive, or get a user’s personal data. They only contain and transfer to the web server as much information as the users themselves have disclosed to a certain website. If you wish to restrict or block the cookies which are set by Parkinson’s Europe’s websites, or indeed any other website, you can do this through your browser settings. Please be aware that restricting cookies may affect some of the functionality of the Parkinson Europe site, although the majority of the site will still be accessible to you.

The Help menu on the menu bar of most browsers will tell you how to prevent your browser from accepting new cookies, how to have the browser notify you when you receive a new cookie and how to disable cookies altogether. Additionally, you can disable or delete similar data used by browser add-ons, such as Flash cookies, by changing the add-on’s settings or visiting the website of its manufacturer. You can find more information about deleting and controlling cookies from the AboutCookies.org website.

Parkinson’s Europe will not use cookies to collect personally identifiable information about you. However, in order to provide services to you within the Parkinson’s Europe intranet or extranet, it is necessary to gather information that will enable the site to personalise, improve and to operate such services. In connection with certain aspects of these services, we may request, collect and/or display some of your personal information. This will only be collected with your explicit consent.

Google Analytics

Parkinson’s Europe uses Google Analytics, a web analytics service provided by Google, Inc. Google Analytics sets a cookie in order to evaluate your use of the Site and compile reports for us on activity to help us understand how visitors engage with the site and track visitor interactions. Google Analytics collects information anonymously and without identifying individual visitors. We do not make, and do not allow Google to make, any attempt to find out the identities of those visiting our website.

Google stores the information collected by the cookie on servers in the US. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google. By accessing Parkinson’s Europe’s websites, you consent to the processing of data about you by Google in the manner and for the purposes set out above.

Google Analytics uses its own cookie to store information, such as what time the current visit occurred, whether the visitor has been to the site before, and what site referred the visitor to the web page. To disable this type of cookie, some browsers will indicate when a cookie is being sent and allow you to decline cookies on a case-by-case basis. In addition to declining cookies, you can also install the Google Analytics Opt-out Add-on in your browser, which prevents Google Analytics from collecting information about your website visits.

Google Analytics retains data for a period of 14 months. After this period, the data is automatically deleted from the Google Analytics servers.

Learn more about the Google Analytics Opt-out Browser Add-on and other Google Analytics privacy information.

Learn more about how Google Analytics uses cookies.

Mailing lists

As part of the registration process for our ad-hoc Parkinson’s Europe-related e-newsletters, we collect personal information. We use that information to tell you about information you’ve asked us to tell you about; to contact you if we need to obtain or provide additional information; and to check every now and then that you’re happy and satisfied. We don’t share this data with any other organisations or businesses. We use a third-party provider, MailChimp, to deliver our newsletter, and a private database Copper to store data. We gather statistics around email opening and clicks to help us monitor and improve our e-newsletters. For more information, please see MailChimp’s privacy notice and Copper’s data privacy and security & GDPR statement. You can unsubscribe to our mailings at any time by clicking the unsubscribe link at the bottom of any of our emails or by emailing us directly at info@parkinsonseurope.org.

We will retain your information for as long as it is necessary to fulfill its purposes or until you request that we update or delete it in accordance with our data retention policies and legal obligations under EU GDPR.

Parkinson’s Europe surveys

Parkinson’s Europe will regularly carry out research surveys with the aim of collecting Parkinson’s-related quality of life information to help us in our aims and objectives – to improve the lives of people with Parkinson’s, their families and carers. We will never ask for personal information that can be used to identify you. We may sometimes ask for an email address and name solely for the purpose of facilitating you to access the survey. Alternatively, we may ask for an email address and name in order to contact you to further share your experience or testimony on the topic of the survey; the purpose of this request will be explained clearly, and you will have the choice whether to provide your details or not. This information will not be sold, given away or used for any other purpose other than facilitating your access to the survey. Parkinson’s Europe may sometimes link to surveys being carried out by third parties. We do not have control over whether these survey sites will collect or use personal information.

Parkinson’s Europe sharing tools

Parkinson’s Europe uses a number of social media tools in the form of ‘share’ buttons to enable users of the site to easily share articles with their friends through a number of popular social networks. As a result, when you visit a page with content embedded or social media buttons and content, you may be presented with cookies from these websites. These websites are not controlled by Parkinson’s Europe. By using these links, you accept the privacy policies of these websites.

These sites may set a cookie when you are also logged in to their service. Data may then be collected by these companies that enables them to display adverts on other sites that they think are relevant to your interests. If you do not use such platforms then our Site will not place these cookies on your device.

YouTube cookies

We sometimes embed video content from our official YouTube channel using YouTube’s privacy-enhanced mode. This mode may set cookies on your computer once you click on the YouTube video player, but YouTube will not store personally-identifiable cookie information for playbacks of embedded videos using the privacy-enhanced mode.

Learn more about embedding videos from YouTube.

Learn more about YouTube’s Privacy Policy.

Buffer Analytics

We use Buffer for analytics purposes to better understand how visitors interact with our content and to improve our social media strategies. Buffer collects information such as user interactions with posts, engagement metrics, and audience demographics. This data helps us evaluate the effectiveness of our social media efforts and tailor our content to better serve our audience.

Buffer may collect and process data in accordance with its own privacy policies and terms of service. We encourage you to review Buffer’s privacy policy for more information on how they handle data and protect user privacy. By using our website and engaging with our social media content, you consent to the collection and processing of data by Buffer for analytics purposes.

How we keep your data safe

We ensure that there are appropriate technical controls in place to protect your personal details. For example, our online website forms are always encrypted and our network is protected and routinely monitored. We undertake regular reviews of who has access to information that we hold to ensure that your information is only accessible by the appropriate Parkinson’s Europe team member(s).

We may occasionally use external companies to collect or process personal data on our behalf. On these occasions, we will undertake comprehensive checks on these companies before we work with them, and put a contract in place that sets out our expectations and requirements, especially regarding how they manage the personal data they have collected or have access to.

Some of our suppliers run their operations outside the European Economic Area (EEA). Although they may not be subject to the same data protection laws as companies based in the UK, we will take steps to make sure they provide an adequate level of protection in accordance with UK data protection law. By submitting your personal information to us you agree to this transfer, storing or processing at a location outside the EEA. We will only ever share your data in other circumstances if we have your explicit and informed consent.

Keeping your information up to date

Where possible we use publicly available sources to keep your records up to date; but we would be grateful if you let us know if/when your contact details change.

Your rights concerning your information

You have a right to ask us to stop processing and/or erase your personal data entirely from our records. And if holding your personal data is not necessary for the purpose you provided it to us for (e.g. processing your donation or registering you for an event) we will do so.

You also have a right to ask for a copy of the information we hold about you, and we will endeavour to provide you with information within 10 working days from your request. If there are any discrepancies in the information we provide, please let us know and we will correct them.

If you want to access your information or request that we erase your personal data entirely, please contact info@parkinsonseurope.org, and we will work with you to verify your identity before providing the information you have requested and/or erasing your personal data from our records.

If you have any questions at all about how we hold your data, or if you wish to make a complaint, please contact info@parkinsonseurope.org. You can also access further information from the Information Commissioner’s Office here.

Additional cookie notes

Google Analytics cookies

Name Expires Purpose
ASP.NET_SessionId This cookie is deleted when browser is closed. The ASP.NET Session ID is a unique session identifier that is automatically created when a session starts for a given visitor. It is a randomly generated number and contains no personal information.
_utma 2 years Google Analytics randomly generated number
_utmb 29 minutes We use Google Analytics to monitor traffic levels, search queries and visits to this website.
_utmc This cookie is deleted when browser is closed. Google Analytics stores IP address anonymously on its servers in the US, and neither CIVIC or Google associate your IP address with any personally identifiable information.
_utmz 6 months These cookies enable Google to determine whether you are a return visitor to the site, and to track the pages that you visit during your session.

 

Cookie name Expiration time Description
_ga 2 years Used to distinguish users.
_gat 10 minutes A system cookie for Google Analytics
__utma 2 years from set/update Used to distinguish users and sessions. The cookie is created when the javascript library executes and no existing __utma cookies exists. The cookie is updated every time data is sent to Google Analytics.
__utmz 6 months from set/update Stores the traffic source or campaign that explains how the user reached your site. The cookie is created when the javascript library executes and is updated every time data is sent to Google Analytics.

Other cookies

Name Source Expires Description
__atuvc & __atuvs Addthis (social sharing) 2 years AddThis: The __atuvc cookie is created and read by the AddThis social sharing site JavaScript on the client side in order to make sure the user sees the updated count if they share a page and return to it before our share count cache is updated. No data from that cookie is sent back to AddThis and removing it when disabling cookies would cause unexpected behaviour for users. More information can be found here
UMB_UCONTEXT & UMB_UPDCHK parkinsonseurope.org 1 day and 7 days respectively These cookies are only for users logged into the site administration area.
XSRF-TOKEN & XSRF-V parkinsonseurope.org This cookie is deleted when browser is closed These cookies are set from the administration login area as a security measure.
Facebook Pixel Facebook Typically session-based or longer depending on user settings. Facebook Pixel tracks user interactions on websites for advertising. It measures ad campaign effectiveness, optimising targeting and enabling remarketing efforts.

How can I contact Parkinson’s Europe?

Find out more and contact us about your rights.

For any other questions or comments about this policy contact us:

  • by email info@parkinsonseurope.org
  • by post: Parkinson’s Europe, Lynwood House Crofton Road Orpington Kent BR6 8QE United Kingdom