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Agenda

Monday 10 October, 2005 - Dublin, Ireland

08.15

Registration

09.00

Welcome and introduction of all delegates

President

09.20

Presentation: Stem Cell Research and New Possibilities

Prof. Peter Eriksson, Sweden

09.50

Q&A and discussion

 

10.20

Coffee Break

11.00

Presentation & Demonstration: Duodopa Pump

Kirsten Bruun, Denmark

11.20

Q&A

 

11.30

250th Anniversary of Dr James Parkinson’s Birth

 

Member organisation up-date on events carried out in their countries to celebrate this important anniversary

All Delegates

Added Value: Global Declaration presentation

Mary Baker

12.30

Lunch

14.00

Business Meeting

 

General Assembly Minutes, Lisbon 2004

Acceptance

Annual Report and President’s update

Mary Baker

Forecast Budget

Branko Šmid

Projects and Activities 2005 onwards

Mary Baker

Board proposals:

  • Conference and Road Shows
  • Membership Fees
 

Auditor’s Report and Accounts for EPDA & PDI Ltd 2004

Acceptance

Auditors for a further term of two years: M J Read & Co

Confirmation

Independent Chair for Election of new Board

Peter Hoogendoorn

Elections

 

15.45

Refreshments

16.30

Presentation: Environmental influence on people with PD

Anja Šmid, Slovenia

16.50

Q&A

 

17.00

RESCUE Project – update

Mariella Graziano

 

Q&A

 

17.20

Any Other Business and General Discussion

 

18.00

Close

 

20.00

Dinner. Entertainment, Dancing & Tombola [Hawthorn Room]

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EPDA Board (2005 - 2006)
EPDA Board (2005 - 2006)

General Assembly - Dublin, Ireland - October 2005

The EPDA's annual General Assembly was held this year on Monday 10 October at Castleknock Hotel & Country Club, Porterstown Road, Castleknock Dublin 15 and followed the 6th Euroyapmeet Conference 'Embrace tomorrow - Make the future brightening not frightening"

The existing Board have worked exceedingly hard in the last two years to provide an organisation that meets the needs of its membership. As a result, the EPDA is well known and highly respected throughout Europe. It is a committed, vibrant, and energetic organisation and requires a committed and energetic Board.

The 2005 GA also saw the election of a new Administration Board and In 2005. It is with sincere regret that the EPDA has to announce that two members of the existing Board have decided not to stand for re-election for a further term of office. Peter Hoogendoorn, The Netherlands and Svend Andersen, Denmark have stood down after several years of support and dedication in an official and unofficial capacity. The EPDA owes them a great debt of gratitude. We will however not lose their expertise and commitment totally. Both have confirmed that they will continue to support the EPDA in the future, be it in an unofficial capacity.

To ensure continuity within the EPDA work programme, the Board unanimously supports for a further Term of Office, the nomination of:

  • Mary Baker, UK as President (for ONE YEAR ONLY)
  • Mariella Graziano, Luxembourg as Secretary
  • Branko Smid, Slovenia as Treasurer
  • Stephen Pickard will continue as Legal Advisor, a non- elected position.

Annual Tombola / Raffle

As usual the Tombola/Raffle was held to raise funds to support the EPDA and the cost of the General Assembly. Tickets were sold throughout the Euroyapmeet.

Every year we are grateful to the generosity of our members who bring with them a gift particular to their country and the eagerly awaited Tombola always takes place at the General Assembly Dinner and Dance - this year it was on the evening of Monday 10 October.

Conference and Road Show Proposal

Dublin, Ireland - October 2005
Sierra and Hawthorn I Room
Castleknock Hotel & Country Club
Porterstown Road
Castleknock
Dublin 15
Ireland


Despite the excellent programme and success of the 5th Multidisciplinary conference in Lisbon, May 2004 this event did prove to be a financial loss for the EPDA. This was due to the following factors:

  • The decision of the Movement Disorder Society (MDS) to hold an annual congress instead of a bi-annual event.
  • The EPDA has always organised conferences in the year when a MDS congress was not being held.
  • However, in 2003 the MDS planned a congress for June 2004 in Rome.
  • As a result the number of delegates who registered for the EPDA was considerably lower than in previous years, resulting in reserved hotel accommodation remaining unsold.
  • The level of sponsorship required to support an EPDA 3-day conference was less because the industry had to support two international congresses within one month of each other.

Throughout the last 18 months the Board has investigated whether or not it would be financially viable for the EPDA to organise another international 3-day conference, bearing in mind the number of international congresses on Movement Disorders that are being held on an annual basis.

Their decision is that the EPDA conferences need to continue but that these need to be on a smaller scale but retaining the EPDA ethos of the holistic team i.e. people with Parkinson’s, their families and healthcare professionals and be made more accessible to the EPDA members.

Two suggestions have been made:

  1. To hold an annual conference every year prior to the General Assembly thereby encouraging the attendance of as many of the EPDA membership as possible
  2. Road Shows – small education days that can be attended by delegates from two/three countries at one time encouraging the ‘buddying’ concept i.e. organisations working with other countries on their borders and sharing knowledge and information

The Board have agreed the following procedure:

  • Conferences will be held in countries where it is possible to hire a venue that is affordable
  • Will be supported by the national organisation i.e. delegate support
  • Will be attractive to sponsoring companies
  • Have a designated number of delegates according to the budget
  • People with Parkinson’s and their families will attend the conference sessions at no charge
  • Accommodation will be identified, with delegates making their own reservations and paying direct

The Board therefore propose the following:

  • That the EPDA organise a conference prior to the General Assembly in 2006
  • That the venue for this conference and General Assembly be Slovenia in September/October 2006
  • That the General Assembly delegates suggest issues they wish covered within the conference programme
  • That the General Assembly delegates discuss and recommend where they would like to see the Road Show concept developed
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Nominees - General Assembly - Dublin, Ireland: 10 October 2005
_Photo-Susanna-Lindvall
Susanna Lindvall [Sweden]
Standing for the position of:
Vice President
_Photo-Mary-Baker2
Mary G Baker, MBE [UK]
Standing for the position of:
President (ONE YEAR ONLY)
_Photo-Knut-Johan-Onarheim
Knut-Johan Onarheim [Norway]
Standing for the position of:
Member
_Photo-Branko-Smid
Branko Smid [Slovenia]
Standing for the position of:
Treasurer
_Photo-Tom-Isaacs2
Tom Isaacs [UK]
Standing for the position of:
Young Onset
_Photo-Mariella-Graziano4
Mariella Graziano [Luxembourg]
Standing for the position of:
Secretary
_Photo-Marios-Tannousis
Marios Tannousis [Cyprus]
Standing for the position of:
Member