[Skip to content]

European Parkinson's Disease Association
Search our Site
Our work

Our work

The EPDA is a non-political, non-religious and not-for-profit organisation.

Our vision

To enable all people with Parkinson’s to live a full life while supporting the search for a cure.

Our mission

To become the leading voice for Parkinson’s in Europe by providing innovative leadership, information and resources to all Parkinson’s stakeholders.

We will achieve our mission through our core activities:

We engage

  • Through discussion and research, we engage people with Parkinson’s and their carers, our member organisations, healthcare professionals, European policymakers, and the treatment industry across Europe to understand gaps in care and develop solutions to unmet needs

We facilitate

  • We enable communications and discussions between Parkinson’s stakeholders to champion collaborations and partnerships that directly benefit people with Parkinson’s and their families

We inform

  • We provide up-to-date information, research and resources for Parkinson’s stakeholders to educate and increase awareness throughout the disease journey

We unite

  • We bring together the Parkinson’s community – particularly national Parkinson’s organisations (our members) – to learn from each other and share good practices

We champion

  • We raise awareness of – and provide an authoritative voice on – the impact of Parkinson’s across Europe with European decision makers

EPDA strategy 2015-2018

Goal 1:

We will positively influence Parkinson’s stakeholders to challenge existing mindsets, shift attitudes and remove the hurdles that prevent people with Parkinson’s from receiving early and appropriate treatment as well as individualised care.

Why is this goal necessary?

People with Parkinson’s face numerous hurdles to optimal care, and these vary widely across Europe. Unmet needs can only be recognised and addressed appropriately by initiating discussions and creating partnerships at a European and national level with all Parkinson’s stakeholders.

The EPDA will achieve its goal by:

  • Conducting research across Europe to understand the different hurdles that negatively impact the progression of Parkinson’s and prevent people with Parkinson’s from living a full life
  • Implementing solutions that contribute to comprehensive and individualised management of Parkinson’s
  • Building multi-stakeholder coalitions across Europe to establish national models of comprehensive care management for Parkinson’s that meet the needs of unique national healthcare systems
Goal 2:

We will involve national Parkinson’s organisations throughout Europe in projects that benefit people with Parkinson’s and their families.

Why is this goal necessary?

There are a number of ongoing and potential Europe-wide projects that benefit people with Parkinson’s and their families. By involving national Parkinson’s organisations in these projects, good practices in care management can be shared and replicated, thereby benefiting more people living with the disease.

The EPDA will achieve its goal by:

  • Facilitating meetings between national Parkinson’s organisations to share learnings, experiences and good practices
  • Developing deeper relationships with MEPs/decision makers, healthcare professionals and the treatment industry in order to steer relevant projects to a large number of national Parkinson’s organisations
  • Engaging with other Europe-wide umbrella organisations to understand project and collaboration opportunities that might benefit national Parkinson’s organisations
  • Assisting national Parkinson’s organisations in developing and implementing their own projects that benefit people with Parkinson's (if requested/required)
Goal 3:

We will increase political awareness of Parkinson’s as a priority health challenge at a national and European level, and build political support for change.

Why is this goal necessary?

Our political engagement rounds in Brussels in 2015 confirmed a distinct lack of awareness and knowledge among the European and national political community on Parkinson’s issues and the variations in care that exist across Europe. There is currently no organised MEP or national MP network that focuses exclusively on Parkinson’s to discuss and develop solutions for the growing disease burden.

Nevertheless, there have been encouraging signs of real support from EU policymakers for changes that could help to improve the quality of diagnosis, treatment and care for people with Parkinson’s. The information and political intelligence gathered in 2015 has also shed light on specific actions that could be taken at a policy level to facilitate improvements, particularly in the areas of funding, research and pan-European coordination.

The EPDA will achieve its goal by:

  • Defining and continuously adapting “key asks” of the EU and national governments
  • Developing and maintaining deep relationships with EU decision-makers and national MPs who can support these asks, using the My PD Journey project as a hook to engage them in Parkinson’s-related events organised by the EPDA and other meetings
  • Facilitating meetings and events between MEPs and national MPs with national Parkinson’s organisations and coalitions to discuss and address national challenges and opportunities