EUROPAR (European Parkinson's Group) is a multidisciplinary group that was formed to perform “real life” non-motor based clinical studies across a wide range of people with Parkinson’s throughout Europe. The main aim of EUROPAR is to pursue studies as they happen in real life and described as a "holistic" natural history study in Parkinson's. The study will additionally include people with Parkinson's who are often excluded from clinical trials e.g. due to their age.
Non-motor symptom holistic research (natural history, novel staging and response to treatment)
- Quality of life studies
Real life comparisons between different therapeutic strategies with non-motor measures as primary outcome measures
Future collaboration with national and international biomarker studies.
In addition, it is anticipated to develop:
greater patient public interaction in relation to clinical trials
expert patient programme
non-motor studies across several centres in Europe addressing issues such as physical therapy in Parkinson’s, sex education, carer needs, stress, vision, pain and sleep.
Regular sessions are planned whereby people with Parkinson's can be educated about their own conditions so that in future it will be possible for them to lead focus groups and expert patient groups themselves with the aim delivering care for Parkinson’s much more within the community and thereby reducing hospital admissions.