The Move for Change campaign is a three-year, three-part pan-European online survey (translated into 24 European languages) that asks people with Parkinson’s (PwPs) whether their lives have improved since the launch of the Charter for People with Parkinson’s in 1997.
Each year, the EPDA receives numerous reports from a number of countries that indicate many PwPs are still waiting a long time to see a Parkinson’s specialist; have limited access to support services; and do not have a Parkinson’s disease nurse specialist (PDNS) service, among many other things. Furthermore, many of the therapy services – such as speech and language, physiotherapy and occupational – are very limited or non-existent. So what difference exactly has the Charter made since its creation to present day healthcare services throughout Europe? The EPDA began the Move for Change campaign to seek answers to this question.
The survey seeks frank responses from participants on one or two specific points from the Charter. The data received from the first two surveys has provided invaluable evidence that supports the fact that the management of PwPs must improve throughout Europe. The results from the campaign have been published in the October 2011 (part 1) and October 2012 (part 2) issues of the European Journal of Neurology (authored by two distinguished neurologists, Bastiaan Bloem and Fabrizio Stocchi) and have played a crucial role in the development of The European Parkinson’s Disease Standards of Care Consensus Statement.