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Move for Change (Part 1: Diagnosis)

The first Move for Change online survey determined whether the first two points of the 1997 Charter – that people with Parkinson's should “be referred to a doctor with a special interest in Parkinson’s” and that they should “receive an accurate diagnosis” – are actually being met across Europe. This survey went live in April 2010 and closed at the end of October that year.

Consistent findings across the 35 countries surveyed revealed that: 

  • only a minority of patients (12%) were actually referred to a Parkinson’s expert for their diagnosis
Move for Change - Key Finding 1
  • the diagnosis of the disease can take more than two years – despite clinical guidelines recommending that patients should be referred to a specialist for an accurate diagnosis within six weeks
Move for Change - Key Finding 2
  • the information people receive at the time of diagnosis is not well matched to their needs
Move for Change - Key Finding 7
  • nearly half of the people with Parkinson’s were dissatisfied with the way their diagnosis was conveyed. Many felt that they were treated abruptly or impersonally. The poorest scores were given when the diagnosis was handled by a neurologist or hospital doctor, and the best scores were given when dealing with a family doctor.
Move for Change - Key Finding 3
If you are interested in going into much more detail about these survey results, please email info@epda.eu.com and/or click on the links above on the right.

Of particular interest is the peer-reviewed article published in the European Journal of Neurology (see third link above right). The article was written by two high-profile Parkinson's specialists, Professor Bastiaan Bloem and Professor Fabrizio Stocchi.