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The European Inventory
The European inventory fits within the first My PD Journey strategy – 'understanding the hurdles'. It is a research project that aims to identify where gaps in the current Parkinson’s care pathways exist and seek out national examples of good practice that could be replicated in other regions.
The My PD Journey work programme is designed to deliver the strategies that have been agreed by the European Strategic Committee.
Parkinson's Composite Scale
The Parkinson's composite scale fits within the second My PD Journey strategy – 'developing solutions'. The project will develop a simple composite scale that can be used to measure the severity of motor and non-motor symptoms of people with Parkinson's.
To address country-specific challenges to the timely diagnosis, treatment and care of Parkinson’s, My PD Journey is actively encouraging the formation of national stakeholder coalitions for Parkinson’s across Europe.
Advocating for better and timelier diagnosis, treatment and care for people with Parkinson’s and their families is at the heart of the My PD Journey project.
My PD Journey is a multi-stakeholder, pan-European coalition led by the EPDA working towards improving the lives of people living with Parkinson’s disease.
Our mission is to enable tailored care for people with Parkinson's throughout their journey.
My PD Journey hosted a summit in the European Parliament in Brussels on Thursday 18 February. The summit marked the exclusive launch of My PD Journey’s second major initiative – the new and simple composite scale, which measures motor-neuron and non-motor-neuron symptoms of the disease. The event also showcased good practice examples of action being taken by My PD Journey coalitions at the national level to address country-specific obstacles.
Read more about the event here. If you would like more information about My PD Journey, please email email@example.com.
Watch our video explaining the aims of My PD Journey
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