These national coalitions aim to establish their own tailored models of comprehensive care management that reflect the challenges in their unique national healthcare systems. They involve a wide variety of stakeholders from across the Parkinson’s community, including EPDA member organisations, Parkinson’s specialist neurologists, patients, carers, hospital managers, industry partners and national and local politicians.
The coalitions are developing and launching pilot projects that are as diverse as the healthcare systems which they are helping to evolve. They are also engaging with politicians at a national, regional and local level who can help to raise awareness of Parkinson’s as a priority health challenge and drive much-needed policy change.
So far, 9 national coalitions have been established and are already addressing some of the key hurdles identified in My PD Journey's European inventory research project. It is My PD Journey’s aim that the national coalitions’ activities be scaled up and/or replicated in other countries that face the same cross-cutting issues.
Click on each country below for information on the current MY PD Journey National coalitions