Three Parkinson’s Cafés took place in 2013 and 2014 as part of the EU-funded Neurological Regeneration Trial (NRT) project. The aim of the cafés was to help people with Parkinson’s (PwPs) find out more about clinical trials and the realities of participating.
The first café was held in the city of Oxford in the UK in July 2013; the second followed in Lund University, Sweden, in November. The third was held Bremen in Germany in April. All three events attracted healthcare professionals and a diverse group of PwPs and their carers. Each meeting provided information about clinical trials and new surgical procedures for PwPs.
Presentations by leading authorities in Parkinson’s disease and patients who have taken part in clinical trials were the focus of the three meetings. Attendees learned about clinical trials, how new drugs are developed, and about new developments in the pipeline for Parkinson’s disease treatments. Attendees were also given opportunities ask questions during interactive question and answer sessions.
The EPDA and NRT
The EPDA’s role throughout the NRT project is one of representing the patient voice. We will ensure that the needs of the people with Parkinson’s are at the heart of all the decisions made.
One of the EPDA ’s main tasks throughout the project is dissemination – in other words, we will ensure that the NRT project is well communicated to Parkinson’s organisations across Europe and disseminated to a wider audience through our website, social media, publications and meetings.