The EUROPAR project has been created to research the non-motor symptoms (NMS) of Parkinson’s. The project’s committee, which consists of healthcare professionals, people with Parkinson’s (PwPs) and patient organisation representatives, aims to represent the interests of PwPs throughout Europe by establishing a research centre at King’s College Hospital in London, the UK.
EUROPAR (European Parkinson's Group) is a multidisciplinary group that was formed to perform “real life” non-motor based clinical studies across a wide range of people with Parkinson’s throughout Europe. The main aim of EUROPAR is to pursue studies as they happen in real life and described as a "holistic" natural history study in Parkinson's. The study will additionally include people with Parkinson's who are often excluded from clinical trials e.g. due to their age.
- Non-motor symptom holistic research (natural history, novel staging and response to treatment)
- Quality of life studies
- Real life comparisons between different therapeutic strategies with non-motor measures as primary outcome measures
- Future collaboration with national and international biomarker studies.
In addition, it is anticipated to develop:
- greater patient public interaction in relation to clinical trials
- expert patient programme
- non-motor studies across several centres in Europe addressing issues such as physical therapy in Parkinson’s, sex education, carer needs, stress, vision, pain and sleep.
Regular sessions are planned whereby people with Parkinson's can be educated about their own conditions so that in future it will be possible for them to lead focus groups and expert patient groups themselves with the aim delivering care for Parkinson’s much more within the community and thereby reducing hospital admissions.
EPDA and EUROPAR
Abstracts are regularly submitted to international congresses and the EPDA is asked to comment on and approve these in advance. These abstracts can be found under 'Initiatives' below.
The main EUROPAR project is a longitudinal study in Parkinson’s (NILS: Non-motor Longitudinal International Study), the largest international study addressing non-motor profiling of Parkinson's and natural history of non-motor symptoms together with treatment response and clinico-pathological correlations. This project has been adopted by the Department of Health in the UK (NIHR: National Institute of Health Research) and also supported by the Spanish ministry of education, and by the MRC (Medical Research Council) Centre for Neurodegeneration Research at King’s College Hospital.
Other EUROPAR projects
Alongside the NILS study, EUROPAR is also running some smaller projects addressing various topics. Study results have been presented at international congresses and details of poster presentations, each of which has been reviewed and approved by EPDA, can be downloaded below.