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European Parkinson's Disease Association
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Real Life, Real PD survey

Real Life, Real PD

The Real Life, Real PD survey was a patient survey conducted across EPDA member countries and supported by pharmaceutical company, GlaxoSmithKline, focusing on the realities of living with Parkinson’s disease (PD) both ‘day and night’.

The survey focused upon questions surrounding difficulties with daily activities such as eating and dressing, mood and possible impact on relationships plus sleep disturbances and emotional well-being.


Pan-European Results and Recommendations for Change

The Real Life, Real PD online survey of Parkinson’s Disease (PD), provided insights into the realities of living with PD. Almost 3000 patients from across Europe participated in the survey between October 2007 and February 2008, when final results were collated and analysed.

A multidisciplinary panel of healthcare professionals and people with an interest in PD, have since reviewed the survey results and developed ten recommendations that could improve the management of PD. It is hoped that the results of the survey will highlight the need for better control of PD symptoms over a 24-hour period and some of the less widely addressed aspects of living with the condition.