We’ve compiled a range of helpful resources for Parkinson’s professionals over the years, from guides and tools for healthcare professionals to crucial Parkinson’s-related research and data.

If you have a resource you think it would be useful to include below, or if you have a story for Parkinson’s Life magazine, please email info@parkinsonseurope.org

Parkinson’s Engagement Network

Our Engagement Network unites the European Parkinson’s community so they can shape the future of how Parkinson’s is managed, treated and help towards finding a cure.

Healthcare professionals should sign up to be kept informed about the latest research, workshops, advocacy campaigns and opportunities, as well as offering your own expertise.

Sign up to our Engagement Network 

Parkinson’s Directory

Our interactive map lists a range of resources, from research and prevalence studies to upcoming events.

Research and Data

Parkinson’s Europe-led research

We frequently lead and collaborate with industry partners on important research, surveys and reports into important issues for the Parkinson’s community.

Discover the latest data from Parkinson’s Europe

External research

Find the latest research papers and studies from the global Parkinson’s community here.

Rating Scales

The Parkinson’s Disease Composite Scale

Developed by the My PD Journey multi-stakeholder coalition, this simple rating scale for neurologists and other Parkinson’s healthcare professionals gives a comprehensive overview of the severity of symptoms in just 15-20 minutes.

Downloads

The Wellbeing Map

Find this and several other common rating scales here.

Videos

Below is a list of videos, in order from most recent, on a range of Parkinson’s-related healthcare topics:

Webinar: can we have equal access to medicines? (November 2022)

Interview with Professor James Kilner on the science behind Parkinson’s (June 2022)

Interview by Charco NeuroTech, who are developing the CUE1, a non-invasive medical device.

Involving PD patients in their treatment management: Expert discussion: Prof Bas Bloem & Dr Margherita Fabbri (March 2022)

The efficacy of Apomorphine – A non-motor perspective: Prof. K Ray Chaudhuri (November 2021)

Role, function and effect of Catechol-O-Methyl Transferase in humans and Parkinson’s disease – Fabrizio Stocchi (October 2020)

Need of 2nd Line Therapies in Advanced Parkinson’s Disease (September 2020)

Non-motor symptoms In Parkinson’s disease recognition and management – Prof Per Odin (June 2020)

A2A receptor antagonists: potential adjuvant therapies for levodopa optimisation – Werner Poewe, Per Odin, Angelo Antonini (May 2020)

The impact of COVID-19 for families with Parkinson’s disease – Bas Bloem (May 2020)

Diagnosis and management of levodopa response fluctuations in Parkinson’s disease – Werner Poewe (March 2020)

Early vs late use of levodopa – Angelo Antonini (December 2019)

Early use of levodopa vs levodopa-sparing strategies – Joaquim Ferreira (December 2019)

Recognition and management of wearing off utilisation of COMT inhibitors – Olivier Rascol (December 2019)

Repositioning COMT inhibitors and response duration in levodopa optimisation – Werner Poewe, Angelo Antonini, Olivier Rascol (December 2019)

Beyond motor wearing-OFF: What have we learned? – Werner Poewe, EAN (July 2019)

The spectrum of wearing-OFF: motor features – Angelo Antonini, EAN (July 2019)

The spectrum of wearing-OFF: non-motor features – K Ray Chaudhuri, EAN (July 2019)

Non-invasive treatment for wearing off – María C Rodríguez-Oroz, EAN July 2019)

 

Resources on specific topics A-Z

Diagnosis

Video: The importance of good communication in a Parkinson’s diagnosis

Dual task exercises

Physiotherapist Parkinson’s Specialist Josefa Domingos created this educational video to guide healthcare professionals’ development of dual-task exercise programmes, an important treatment for people with Parkinson’s who lose the natural ability to perform more than one task at once:

Education of healthcare professionals

In November 2021, Parkinson’s Europe held a virtual workshop focused on “Improving the education of healthcare professionals who manage people with Parkinson’s”.

The workshop featured six people with Parkinson’s and two carers from eight different European countries, who shared their experiences about communication with Parkinson’s healthcare professionals.

Improving The Education Of Healthcare Professionals – Parkinson’s Europe Workshop

Sleep

Prof. K Ray Chaudhuri: Sleep Issues in Parkinson’s Disease – Diagnosis, Intervention & Practical Advice

The discussion highlights the appropriate diagnosis of sleep disorders, intervention strategies, practical advice for healthcare professionals, patients and carers, and the impact of sleep issues on the day to day lives of people with Parkinson’s.

Content shared with permission from Touch Medical Media.

Parkinson’s Sleep Well for healthcare professionals: Professor Bas Bloem

Neurologist and Parkinson’s specialist Professor Bas Bloem shares advice for healthcare professionals working in the Parkinson’s field, to help people living with Parkinson’s to overcome sleep problems.