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EPDA Plus Issue 20 (EN)
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EPDA Plus Issue 20

Autumn 2012 | English

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ISSUE 20 CONTENTS

  • 20th anniversary event to be 'action-packed'
    The EPDA is gearing up for the biggest weekend in its history – in what will be the highlight of a host of activities to support the umbrella organisation’s 20th anniversary year.
  • Airline admits fault
    A man with late-stage Parkinson's who missed his flight because an airline company refused him help has made headlines throughout the world.
  • NHS 'failing patients'
    Too many people in the UK with neurological conditions are being admitted to emergency wards and receiving delayed diagnoses, according to a new report by the Neurological Alliance.
  • New medicines website
    The European Medicines Agency (EMA) has launched a new public website that publishes suspected side effects of medicines authorised in the European Economic Area.
  • EPDA pledges to aim focus on EU in 2013
    The EPDA is planinng to ramp up its political affairs and policy plans for 2013 in order to build on the "tremendous" successes it has made in the last 12 months, according to interim secretary general Amanda Worpole.
  • Olympic torchbearers shine a light on PD
    Three British people with Parkinson's were honoured with the task of carrying the Olympic torch through various UK towns and cities in July due to their extensive campaigning work
  • PD nurse awarded royal honour
    A Parkinson's disease nurse specialist at the Parkinson's Western australia support organisation has been awarded the Order of australia in the birthday honours of Elizabeth ii, queen of the Commonwealth realms, for her work with people with Parkinson's.
  • New pill could ease Parkinson's symptoms
    A single pill that could treat Parkinson's, alzheimers disease and multiple sclerosis has been given the go ahead for safety trials in humans. The treatment works by reducing the inflammation that causes many degenerative brain conditions.
  • Woman gets on her bike for PD
    A UK woman is planning to cycle more than 500km across South East asia in November to raise as much money as possible for Parkinson's UK.
  • DBS survivor on the road to Rio
    A future paralympian who underwent a deep brain stimulation operation in 2009 has been chosen for the UK's Bank of Scotland's local heroes initiative.
  • Belgian patient group 'finds strength' in art
    Seventeen artists with Parkinson's have displayed their work in a unique exhibition in Brussles, Belgium.
  • Device to tackle freezing episodes
    Walking difficulties and 'freezing' episodes among people with Parkinson's could be reduced with the use of a new rehabilitation device.
  • PD communities show united front
    The Parkinson's community has enjoyed 'Unity Walk' fever in 2012 with patient organisations in the US and Denmark raising huge amounts of awareness and money for Parkinson's research. both events set the scene perfectly for the EPDA's first European Unity Walk, which will be held in Amsterdam on 28 September (see pages 12-13).
  • Coffee boost for PWPs?
    Drinking up to four cups of coffee per day may help reduce Parkinson's symptoms, according to a new study.
  • Little's big vocal test
    UK mathematician Max Little has devised a test that can diagnose Parkinson's from differences in vocal patterns.
  • REMPARK device launch
    A groundbreaking device is to be launched that monitors Parkinson's symptoms and regulates the delivery of medication.
  • All the world's a stage... for PD
    World Parkinson's Disease Day is a very special and important day for Parkinson's organisations all over the world. But no two celebrations are ever the same, which is why EPDA Plus asked its members and friends to share news of their awareness-raising activities
  • Are you walking the walk?
    The EPDA's first European Unity Walk is nearly upon us and now it's official: it is a must-attend event. EPDA plus speaks to the great and good in the world of Parkinson's about why the disease community should make their way to Amsterdam and why actions speak louder than words.
  • Standing out from the crowd
    The life of a voluntary organisation is far from easy in today's economic and social climate. As a result, the EPDA is embarking on a series of groundbreaking new initiatives that aim to maximise its members' potential, which in turn will create real and lasting change for people with Parkinson's. Cat Dean reports.
  • Inspiring a better life
    The third and final booklet in the EPDA's Life with Parkinson's awareness campaign is now available to download and use. To whet your appetite, EPDA Plus presents an edited extract from the foreword, excerpts from some of the articles, and views from the people who find the campaign materials invaluable.
  • It's good to talk
    Sexuality and intimacy are huge challenges that face people with Parkinson's and their partners. But as specialists Gila Bronner and Orna Moore explain, open channels of communication are essential for a decent quality of life.
  • From humble beginnings...
    It is the biggest Parkinson's organisation in Europe, and with its 550-strong staff it manages to raise millions of pounds for research each year. But Parkinson's UK has not always been so prolific, and its story – based on hard work, determination and collaboration – should be an inspiration to many of the smaller European patient organisations looking to reach similar heights. EPDA Plus meets chief executive Steve Ford to find out more.
  • Putting PD on the map
    The Parkinson's Well-Being MapTM has been developed to help people with Parkinson's better communicate their health status to their multidisciplinary teams. UCB's Eimear O'Brien explains what it is and how to use it.

EPDA PLUS SUBSCRIPTION

The EPDA Plus is targeted at international healthcare professionals, patient organisations, the treatment industry and external organisations.

It is FREE to subscribers - Terms apply.

You must provide a postal address if you wish to receive a copy by post.

From issue 13, EPDA Plus has been translated into French, German, Italian and Spanish.  These multilingual versions are only available to download.