Global Declaration

Working Group on PD Recommendations

Working Group on PD

Many of the changes we wish to make take time to implement and take effect. Policies for health must therefore take a long-term perspective.

WHO 'Health for All' for the 21st century

 

In light of this, the Working Group on PD made the following recommendations:

  1. We urge support for these global efforts to reform medical education in support of the WHO Health for All Initiative. Steps to increase public awareness of PD as a priority health problem should be pursued vigorously, including the collection of salient information about all aspects of PD, (epidemiology, available treatment modalities, costs of care, consequences to patients and families, resulting from a loss of independence, types of care givers and support services for PD sufferers, and so forth), along with widespread dissemination of this information to the public, health authorities, medical schools and teaching hospitals. Experts in health care teams, especially in those situations where other groups of health workers or patients serve as team captains.
  2. That all health authorities worldwide support the WHO Health for All concept, and implement the programme in the case of PD consistent with the resources that are available at each stage of industrial development. To provide the largest number of the most important services for the largest number of people, priority health problems must be identified in each society. For disorders such as PD, there should be a national steering group comprised of patients, care givers, and national organisations that advocate patients' interests, and should include health care providers of all types, including doctors who represent specialist, sub specialist, and general practitioner viewpoints and experiences.
  3. That health authorities take steps to achieve coordination of effort by health workers within the three-tier model of service delivery presented in the broad outline above, and to arrange care that is structured in accordance with results of cost-effectiveness studies of alternative provider arrangements and sites of care provision across the full spectrum of illness.
  4. Given total national costs and individual financial burdens that exceed private and governmental resources, the WHO Working Group on Parkinson's disease recommends a partnership between neuroscientists and health workers to devise ways to improve access to needed care and treatment for all PD patients, and to foster practice guidelines to assist health care workers in the management of medication side effects, especially among the elderly.
  5. Recommends a partnership between doctors and other health care workers with voluntary (non- Governmental) organisations that represent patient interests to promote better public understanding of PD, to reach out to all ethnic and cultural groups of patients and to overcome negative attitudes in society toward chronic neurologic and psychiatric illness.