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Members' meeting 2017

President's invitation

Dear Friends

We are looking forward once again to as many of you as possible attending this year’s members’ meeting and general assembly. The meeting will take place Wednesday 15 and Thursday 16 November 2017 at The Runnymede Hotel – the same venue as in previous years.

The format of this meeting will be similar to last year, with a few small changes to reflect the feedback received. Since our last meeting we have tried to get to know you better and communicate with you in a more effective way.

The members meeting will be an ideal opportunity to reflect on this and celebrate the successes and to further improve our partnership as we move forward. As always there will be opportunity for you to individually network with your fellow members. We will be having a short session to update you on the Parkinson's Disease Composite Scale as well as presentations from one or two of our industry partners introducing projects in which you may wish to be involved.

Can you please complete the registration form and email it back to Please do this as soon as you can so we can ensure that hotel accommodation is secured for you at The Runnymede Hotel.

The deadline for registrations is Friday 6th October

The EPDA Board and team look forward with great pleasure to sharing an exciting and informative couple of days with you all.

Warm regards

Signature of EPDA President Knut-Johan Onarheim

Knut-Johan Onarheim

EPDA President

Members' meeting registration form 2017


Wednesday 15 November, 2017
Timings: 11.00 – 18.00





Lunch served in the Leftbank Restaurant 




Knut-Johan Onarheim
EPDA President (Norway)


Advocacy workshop  

What you can achieve by engaging with your national governments


Sharing advocacy good practice examples from our membership

Magne Friedriksen (Norway)
Laura Carrasco Marin (Spain)

Parkinson’s advocacy across Europe: Introducing our member survey and why it matters to you

Open discussion  


Parkinson's Disease Composite Scale (PDCS) workshop  

PDCS - why does it matter to you?


Understanding the PDCS development and where we stand now

Fabiana Radicati (Italy)

Navigating the benefits for clinical disease management

Cristian Falup-Pecurariu (Romania)

A tool for patient empowerment

Paula Gilmore (Ireland)

Rolling out the PDCS in clinical settings, and how members can get involved in the roll-out


Open discussion   






Clinical trials


16.30 Establishing a patient-centered ecosystem: Mapping the journey in Parkinson’s disease Teva Pharmaceuticals


Close of the meeting



Dinner in a private room at the hotel


Thursday 16 November, 2017
Timings: 09.00 – 13.00



Knut-Johan Onarheim


Member workshops

Val Buxton (Parkinson's UK)

Veronica Clark (Malta Parkinson's Disease Association)


• Supporting self-management

• Educating professionals

• Changing public attitudes

• Building multifunctional teams

• Growing income

• Recruiting members and volunteers





General assembly  


Knut-Johan Onarheim

Financial update 2016

Lizzie Graham

EPDA update 2017-18

Dominic Graham

#UniteForParkinsons update

Dominic Graham

Increase in membership fees

Knut-Johan Onarheim

Board elections:
Independent Chair

Susanne Brühlmann 


Any other business, close and thanks



Lunch will be served in the Leftbank Restaurant





Venue, travel and accommodation

Wednesday 15 November – Thursday 16 November 2017


Overnight accommodation will be booked for everyone in accordance with the requests submitted on the registration form.

Breakfast at the Hotel

Breakfast will be served from 06.45 in the Leftbank Restaurant.


When booking your flights or other modes of transport please ensure that you take into account the start and finish times of the meeting and ensure that you are able to attend the whole event.

Hotel Details

The Runnymede on Thames
Windsor Road, Egham
United Kingdom

Visit the hotel website.


If you are arriving into Heathrow Airport, the easiest and most cost effective option is to pre book a car. A company that we have used and can recommend is Gemini Cars. It is very easy to pre-book following this link: The cost will be approximately GBP 20.00.

Important note: Please be aware that if you take a black cab from Heathrow Airport the cost can double and could be in excess of GBP 40.00. So please try to organize your taxi in advance by pre-booking with Gemini (see paragraph above). If you need any help please contact

If you are arriving by train the closest train station is Egham, which is on the South West train link out of Waterloo main line station. The hotel is located approximately 5 minute’s drive and 20 minute’s walk from the station. Gemini Cars are located opposite the station.

Registration terms and conditions

  • Official Delegates (full voting members) will pay GBP 198.00 which is 50% of the total cost of the two day event. This will include: meeting rooms, lunch and refreshments for both days, dinner with wine on Wednesday evening and accommodation on Wednesday night.
  • Accompanying Delegates (non-voting members) - not sharing a room - will pay GBP 396.00 the total cost of the two day event. This will include: meeting rooms, lunch and refreshments for both days, dinner with wine on Wednesday evening and accommodation on Wednesday night.
  • Accompanying Delegates (non-voting members) - sharing a room - will pay GBP 227.00 the total cost of the two day event. This will include: meeting rooms, lunch and refreshments for both days, dinner with wine on Wednesday evening and accommodation on Wednesday night.

Registration terms

  • All delegates are required to complete the registration form and return it to by Friday 6 October.
  • Upon receipt of the registration form, an invoice for the fees applicable – including payment instructions - will be emailed to you.
  • Please ensure that payment is made within 30 days of receiving the invoice.
  • An additional GBP 21.50 (€30) will be added to the total fees to allow for bank charges.
  • Please note we can only accept bank transfers.
  • Registration fees must be paid by Wednesday 18 October to guarantee your place.

If you do not receive an invoice or you have any queries, please contact Natalie Levenhagen ( 

Cancellation charges

Should it be necessary to cancel your registration or if you do not arrive, the following charges will apply for accommodation and events booked on your behalf:

  • 50%  - From completion of registration form until Monday 11 September
  • 75%  - From Tuesday 12 September until Monday 16 October
  • 100%  - Tuesday 17 October

Speaker presentations

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