The Working Group on PD
The Working Group on PD
was formed by the World Health organisation (WHO) in 1997, to develop
guidelines for the WHO-led international efforts to control PD.
The group
originally consisted of leading specialists in PD from Argentina,
Austria, Canada, Germany, Russia, South Africa, Spain, UK and USA, as
well as representatives from the EPDA. In order to fully reflect the
WHO regions of America, Europe, East Mediterranean, Africa, South East
Asia and Western Pacific, membership has since increased to include
India, Japan, and Jordan. Annual meetings have been held alongside World PD Day celebrations in Spain, USA, Argentina, Japan, Russia, India and South Africa.
The
aims and objectives of the group have been to develop a Global PD
Alliance, to utilize the expertise of the membership working in
partnership with lay organisations within the WHO regions, and
ultimately transfer the 'Charter for people with PD' into a Global Declaration.
For further information see Working Group on PD recommendations.
The European Parkinson's Disease Association (EPDA)
The
EPDA was formed June 1992 in Munich with a membership of 9 European
Parkinson's Patient organisations. In 2006, its membership has
increased to 38 from Austria, Belgium, Bulgaria, Croatia, Cyprus, Czech
Republic, Denmark, Estonia, Faeroe Islands, Finland, France, Hungary,
Iceland, Ireland, Israel, Italy, Lithuania, Luxembourg, Netherlands,
Norway, Poland, Portugal, Russia, Slovenia, Sweden, Switzerland,
Turkey, Ukraine, UK, and Yugoslavia. It also has 7 Associate members
including the Movement Disorder Society, the European Federation of
Neurological Associations and the Tremor Foundation.
The EPDA is a non-religious,
non-political and non-profit making organisation concerned with the
health and welfare of people living with Parkinson's disease and their
families.
The EPDA has provided an important forum to work in
partnership and collaboration with European organisations, both patient
and neurological, the European Commission, the World Health
Organisation, the World Federation of Neurology and the pharmaceutical
industry. This partnership has enabled the development of research
projects into quality of life issues and conferences for
multidisciplinary teams and people with Parkinson's of any age.
For further information see www.epda.eu.com/businessPlan
The International Council of Nurses
The International
Council of Nurses (ICN) is a federation of national nurses’
associations (NNAs), representing nurses in more than 120 countries.
Founded in 1899, ICN is the world’s first and widest reaching
international organisation for health professionals. Operated by
nurses for nurses, ICN works to ensure quality nursing care for all,
sound health policies globally, the advancement of nursing knowledge,
and the presence worldwide of a respected nursing profession and a
competent and satisfied nursing workforce.
ICN
has a long history in undertaking major activities that target quality
practice. Its International Regulation Project has been influential
globally in helping ensure nurses are safe and competent and the public
is protected. ICN’s standards and competency work is driven by the
belief that comparable standards and competencies, both within a
country and in the international context, are key to reaching higher
universal outcomes for health care.
ICN
has considerable experience in managing grants of various amounts, and
has worked with foundations and funding agencies such as the W.K.
Kellogg Foundation, Merck Foundation, the Government of New Zealand,
the Swedish International Development Cooperation Agency, and the
Danish Agency for Development Assistance as well as numerous
nongovernmental agencies. Additionally, ICN has extensive experience
in implementing and sustaining complex international projects that may
include several countries, a number of phases and multiple
methodologies.
For further information see www.icn.ch
Industrial Partners
The EPDA would like to acknowledge
the partnership of the following companies without whose support, this
project would not be possible.
