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EUROPEAN PARKINSON'S DISEASE ASSOCIATION
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How People Living with Parkinson's Disease in Four European Countries View Occupational Therapy

How People Living with Parkinson's Disease in Four European Countries View Occupational Therapy
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How People Living with Parkinson's Disease in Four European Countries View Occupational Therapy

28 July 2011
Jansa J, Aragon A, Lundgren-Nilsson A


Introduction: People with Parkinson's disease (Parkinson's) experience diverse symptoms that impact on many aspects of daily life. Occupational therapy (OT) aims to optimize independence, coping, and social participation and can make a valuable contribution to management of the condition.

Method: A prospective study was undertaken using an anonymous, open Web-based questionnaire, devised to explore the experiences and opinions of OT among a group of people living with Parkinson's in Norway, Slovenia, Sweden, and the United Kingdom.

Resullts: The views of 230 respondents with many of the typically recognized demographic and clinical features of Parkinson's populations were collected. The need for help in daily life was commonly reported, encompassing activities related to self-care, productivity, and leisure. Approximately half the people surveyed (54%) reported having seen an occupational therapist since their diagnosis. The location, frequency, and duration of interventions varied considerably between the four countries. The content of OT was diverse and included assistance for using arms and hands, carrying out daily activities, and concerned receipt of advice about aids, equipment, environmental adaptations, further support and services, and education about Parkinson's. Among the people who had received OT, there was a high level of consensus that they would recommend it to others with Parkinson's.

Conclusion: In this sample, differences in OT services for people with Parkinson's were reported. Where OT services were received, it was seen as an important intervention. Further studies with a larger sample and involving more countries are needed to verify and build-on these findings.


Further information: For details of this study please visit http://www.epda.eu.com/projects/ot-survey