Skip Navigation

This Privacy Policy describes the policies and procedures of the European Parkinson's Disease Association ("the EPDA", "we", "our" or "us") on the collection, use and disclosure of your information on (the "Site") and the services, features, content or applications offered by the EPDA (collectively with the Site, the "Services").

The EPDA receives information about you from various sources, including:

  1. if you register for the Site and the Services, through your user account with the EPDA (your "Account");
  2. your use of the Services generally; and
  3. from third party websites and services.

When you use the Services, you are consenting to the collection, transfer, manipulation, storage, disclosure and other uses of your information as described in this Privacy Policy and our Terms of Use.

What information does the EPDA collect?

If you submit personal information through one of the following features of our Site, it may be collected and stored by the team that administers the Services:

  • enquiries sent in through the 'contact us' form
  • survey forms
  • membership forms
  • mailing list subscription forms. (EPDA use MailChimp as our email service provider.  More information about their specific privacy policies can be found here)

For a copy of any information collected about you through any of the above methods, please email with the URL of the form.

Following a link to another website

When you go to another website, read the privacy policy on that website if you want to know what it does with your information. EPDA does not pass on any of your personal information to other websites or sold to any third party.

Is information about me secure?

Your Account information is protected by a password for your privacy and security. You need to prevent unauthorized access to your account and Personal Information by selecting and protecting your password appropriately and limiting access to your computer and browser by signing off after you have finished accessing your account.

EPDA endeavors to protect Account information to ensure that it is kept private; however, EPDA cannot guarantee the security of any Account information. Unauthorized entry or use, hardware or software failure, and other factors, may compromise the security of user information at any time.

EPDA Surveys

The EPDA will often carry out research surveys with the aim of collecting data to support its aims and objectives to improve the lives of people with Parkinson's, their families and carers. We will never ask for personal information that can be used to identify you. We may sometimes ask for an email address and name solely for the purpose of facilitating your access the survey. This information will not be sold, given away or used for any other purpose other than facilitating your access to the survey.

EPDA may sometimes link to surveys being carried out by third parties. We do not have control over whether these survey sites will collect or use Personal information.


Cookies are small pieces of text stored as a file on the computer's hard drive. They are not computer programs, and they cannot be executed as code. They cannot be used to disseminate viruses or access the hard drives - a cookie cannot read other information saved on the hard drive, or get a user's e-mail address etc. They only contain and transfer to the web server as much information as the users themselves have disclosed to a certain web site.

Cookies are used by your browser and by most websites to help personalise or improve your web experience. If you wish to restrict or block the cookies which are set by EPDA websites, or indeed any other website, you can do this through your browser settings. Please be aware that restricting cookies may affect some of the functionality of the EPDA website although the majority of the site will still be accessible to you.

The Help menu on the menu bar of most browsers will tell you how to prevent your browser from accepting new cookies, how to have the browser notify you when you receive a new cookie and how to disable cookies altogether. Additionally, you can disable or delete similar data used by browser add-ons, such as Flash cookies, by changing the add-on's settings or visiting the website of its manufacturer.

You can find more information about deleting and controlling cookies from the website.

The EPDA will not use cookies to collect personally identifiable information about you. However, in order to provide Services to you within the EPDA intranet or extranet, it is necessary to gather information that will enable the Site to personalize, improve and to operate such Services. In connection with certain aspects of the Services, we may request, collect and/or display some of your Personal Information.

Google Analytics

The EPDA uses Google Analytics, a web analytics service provided by Google, Inc.

Google Analytics sets a cookie in order to evaluate your use of the Site and compile reports for us on activity on the Site to help us understand how visitors engage with the Site and track visitor interactions. Google Analytics collects information anonymously and without identifying individual visitors.

Google stores the information collected by the cookie on servers in the United States. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google's behalf. Google will not associate your IP address with any other data held by Google. By accessing the Site, you consent to the processing of data about you by Google in the manner and for the purposes set out above.

Analytics uses its own cookie to store information, such as what time the current visit occurred, whether the visitor has been to the site before, and what site referred the visitor to the web page. To disable this type of cookie, some browsers will indicate when a cookie is being sent and allow you to decline cookies on a case-by-case basis. In addition to declining cookies, you can also install the Google Analytics Opt-out Add-on in your browser, which prevents Google Analytics from collecting information about your website visits.

  • Learn more about the Google Analytics Opt-out Browser Add-on and other Google Analytics privacy information.
  • Learn more about how Google Analytics uses cookies.

Google Analytics sets cookies to help us accurately estimate the number of visitors to the website and volumes of usage. This to ensure that the service is available when you want it and fast.

The table below explains the cookies we use and why.





This cookie is deleted when browser is closed.

The ASP.NET Session ID is a unique session identifier that is automatically created when a session starts for a given visitor. It is a randomly generated number and contains no personal information.


2 years

Google Analytics randomly generated number


29 minutes

We use Google Analytics to monitor traffic levels, search queries and visits to this website.


This cookie is deleted when browser is closed.

Google Analytics stores IP address anonamously on its servers in the US, and neither CIVIC or Google associate your IP address with any personally identifiable information.


6 months

These cookies enable Google to determine whether you are a return visitor to the site, and to track the pages that you visit during your session.

EPDA sharing tools

EPDA use a number of social media tools in the form of ‘share’ buttons to enable users of the site to easily share articles with their friends through a number of popular social network. As a result, when you visit a page with content embedded or social media buttons and content, you may be presented with cookies from these websites. These websites are not controlled by EPDA. By using these links you accept the privacy policies of these websites.

These sites may set a cookie when you are also logged in to their service. Data may then be collected by these companies that enables them to serve up adverts on other sites that they think are relevant to your interests. If you do not use such platforms then our site will not place these cookies on your device.

YouTube cookies

We sometimes embed video content from our official YouTube channel using YouTube's privacy-enhanced mode. This mode may set cookies on your computer once you click on the YouTube video player, but YouTube will not store personally-identifiable cookie information for playbacks of embedded videos using the privacy-enhanced mode.


The EPDA will often post links to the EPDA and external websites through its Facebook and Twitter profiles. These posts will sometimes use the Bitly utility to create shortened uniform resource locators ("URLs" or web addresses).

Bitly collects information about accesses (such as clicks) of every shortened URL created through the Services. This information includes, but is not limited to: (i) the IP address and physical location of the devices accessing the shortened URL; (ii) the referring websites or services; (iii) the time and date of each access; and (iv) information about sharing of the shortened URL on Third Party Services such as Twitter and Facebook. These metrics and analytics are used by Bitly and its partners to improve their websites and services by, for example, providing value-added features.

What happens when there are changes to this Privacy Policy?

If this privacy policy changes EPDA will update this page. You should visit this page regularly so you know:

  • what personal information EPDA collects
  • how EPDA uses your personal information
  • when (if ever) EPDA shares your personal information with someone else.

What if I have questions or concerns?

If you have any questions or concerns regarding privacy using the Services, please send us a detailed message to: We will make every effort to resolve your concerns.

Additional cookie notes

Google Analytics Cookies

Cookie Name

Expiration Time



2 years

Used to distinguish users.


10 minutes

A system cookie for Google Analytics


2 years from set/update

Used to distinguish users and sessions. The cookie is created when the javascript library executes and no existing __utma cookies exists. The cookie is updated every time data is sent to Google Analytics.


6 months from set/update

Stores the traffic source or campaign that explains how the user reached your site. The cookie is created when the javascript library executes and is updated every time data is sent to Google Analytics.

Other cookies





__atuvc & __atuvs

Addthis (social sharing)

2 years

AddThis: The __atuvc cookie is created and read by the AddThis social sharing site JavaScript on the client side in order to make sure the user sees the updated count if they share a page and return to it before our share count cache is updated. No data from that cookie is sent back to AddThis and removing it when disabling cookies would cause unexpected behaviour for users.  More information can be found at


1 day & 7 days respectively

These cookies are only for users logged into the site administration area.


This cookie is deleted when browser is closed

These cookies are set from the administration login area as a security measure.

Back to top