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Our people

The EPDA is managed by a number of employees and freelance professionals with many years of relevant experience, supporting an elected Board and their advisers. If you would like to get in touch with the EPDA, please email info@epda.eu.com.

Board

Veronica was elected EPDA President in 2020, and has served as a Board Member since 2017.

She was elected as president of Malta Parkinson's in 2012, a position she still holds.

Veronica was born in Malta but now lives in the UK. She graduated from the University of Malta as a speech and language therapist, and has a special interest in working with adult patients with acquired neurological conditions.

Veronica's mother has Parkinson's and she is involved in her mother’s care on a regular basis.

Danny was elected EPDA Vice-President in 2020, and has served as a Board Member since 2017.

He was born in the UK in 1963, and from 1980 to 2013 he worked as a tax professional for the UK's Her Majesty's Revenue and Customs. He was awarded an MBE for outstanding services to local government in 2008, after being diagnosed with idiopathic young onset Parkinson's in 2004.

Danny is a keen sportsman and an accomplished ultra-endurance athlete. He founded his own charity – Beat Parkinson’s – in 2013.

Lizzie has worked with the EPDA since 1992. She retired from her position as Executive Director in December 2018.

She remains a Board Member and has been appointed as an advisor commencing January 2019.

Gary was elected as an EPDA Board member in 2021.

He lives in Dublin, Ireland, with his wife, son and daughter. Gary spent most of his career working for a large multinational corporation in senior human resource roles. He was diagnosed with Young-Onset Parkinson’s Disease in 2011, at the age of 44, and ceased working in 2015.

Gary is now a patient advocate and champion of greater awareness of Parkinson’s, and has been a Board member of the Parkinson's Association of Ireland for two years, until early 2020. He is passionate about maintaining an active lifestyle to keep Parkinson's at bay.

Josefa was was elected as an EPDA Board Member in 2020.

She is a physiotherapist, and her career has focused on creating and implementing specialized care for people living with Parkinson. Josefa has been the National Health Coordinator at the Portuguese Parkinson's Patients Association since 2006, and she founded more than 8 Parkinson's specialised services throughout the Association branches all over the country.

As an educator, clinician and researcher, she is currently finishing her PhD on Practicalities of Community-based exercise in Parkinson's at Radboud University Centre (The Netherlands), under the supervision of Professor Bastiaan Bloem.

Cvetka was was was elected as an EPDA Board Member in 2020.

She is a biologist, and has been the President of the Slovenian Parkinson's association Društvo Trepetlika since 2006. The main aim of the association is to empower and educate people with Parkinson's so they can keep in control of their condition, with a special focus on people with YOPD and carers.

Cvetka was a carer to her husband, who had Parkinson's, for 14 years.

Antonella was elected as an EPDA Board member in 2021.

She spent 25 years managing non-profit organisations at a national and international level, to advance equity and inclusion in the fields of health and disability. She has been CEO of the Italian Multiple Sclerosis Society until 2015, board member of the European Multiple Sclerosis Platform and the Multiple Sclerosis International Federation, as well as Director of Development and Communications at Italian Lega del Filo d’Oro.

In 2019 she joined Confederazione Parkinson Italia as a Board member and founded her own company Moretti Management Consulting, which works with non-profit associations, contributing to their growth and long-term sustainability.

Patricia was elected as an EPDA Board member in 2021.

She is a neuropsychologist and she has been working with the Spanish Parkinson's Federation (FEP) since 2017. In her current role as FEP's Project Manager in the Social Innovation and European Projects area, she works on: supporting Parkinson's research by disseminating news and promoting patients' participation; providing guidance and education for people with Parkinson's; producing quality informative content for the Federation's website and social media channels; and developing support networks for people with Parkinson's living in rural areas.

Tsipi was was was elected as an EPDA Board Member in 2020.

Following her Parkinson’s diagnosis in 2005, she began painting and went on to do so professionally and to exhibit her works in Israel and throughout the world. Her personal story of coping and thriving through her art has inspired a series of exhibitions of works created by artists with Parkinson’s, which she has overseen and coordinated.

A longtime volunteer with the Israel Parkinson Association, she became a Board member in 2015, and she has been developing content and projects for the association ever since.

Barbara was elected as an EPDA Board Observer in 2022.

Barbara is a yoga teacher, flow and neuro coach. She has been working as a therapist for neurological and movements disorders for 15 years, working mostly with Parkinson’s families on behalf of local associations in the past six years.

In 2019 she started collaborating with the Comitato Italiano Associazioni Parkinson on the WikiparkyTV and PDMapping international projects, as well as a trainer.

Barbara is committed to actively engaging with people with Parkinson’s and their families, to better understand not only their condition but also their personal needs, with the view of sharing and learning from each other.

Karl was elected as an EPDA Board Observer in 2022. He lives in Belgium, has a Masters in German Philology, is alumnus of the Vlerick Management School and studied Global Corporate Communications at New York University.

When diagnosed with Parkinson's, he decided to devote his energy to improving the lives of people with the condition. He founded medinet.tv – a video platform for patients and caregivers – and became a Board member of the Vlaamse Parkinson Liga.

Karl has a background in healthcare-related communications: initially as head of corporate communications for the pharmaceutical industry, and later by setting up a communications agency that focused on supporting disease management programs in underserved regions in Africa and Asia as well as Innovative Medicine Initiative (IMI) projects.

A passionate cyclist himself, Karl is a big promoter of an active lifestyle.

Executive Committee

Veronica was elected EPDA President in 2020, and has served as a Board Member since 2017.

She was elected as president of Malta Parkinson's in 2012, a position she still holds.

Veronica was born in Malta but now lives in the UK. She graduated from the University of Malta as a speech and language therapist, and has a special interest in working with adult patients with acquired neurological conditions.

Veronica's mother has Parkinson's and she is involved in her mother’s care on a regular basis.

Danny was elected EPDA Vice-President in 2020, and has served as a Board Member since 2017.

He was born in the UK in 1963, and from 1980 to 2013 he worked as a tax professional for the UK's Her Majesty's Revenue and Customs. He was awarded an MBE for outstanding services to local government in 2008, after being diagnosed with idiopathic young onset Parkinson's in 2004.

Danny is a keen sportsman and an accomplished ultra-endurance athlete. He founded his own charity – Beat Parkinson’s – in 2013.

Lizzie has worked with the EPDA since 1992. She retired from her position as Executive Director in December 2018.

She remains a Board Member and has been appointed as an adviser commencing January 2019.

Team

Dominic was appointed EPDA Operations Director in January 2019. He has vast experience in organisation and team management, as well as project development within the not-for-profit sector.

He has worked as a freelance consultant for many years including nearly 20 years experience as a UK-based journalist working with well-known customer publishing companies.

Francesco was appointed as Stakeholder Partnership Manager in September 2021 having worked with the EPDA since 2018 as Information Manager and Project Officer.

Francesco has a background in political science, communication and public health. His EPDA responsibilities include treatment industry partnership projects management, stakeholder relations and external communication.

Amelia joined the EPDA team in January 2022 as Research Manager. She has been working in the field of Neurodegenerative research since 2009.

She previously worked for the NIHR’s DeNDRoN and then at Parkinson’s UK from July 2015 as Research Participation Lead. She was responsible for initiatives to increase research participation for people affected by Parkinson’s, health care professionals and researchers, and created the innovative Parkinson’s UK Take Part Hub and co-produced the Staying Connected toolkit.

Lisa joined the EPDA in April 2021 as Finance Manager. She has over 20 years' experience in accounting and finance roles across different sectors including hospitality, publishing and public relations. Prior to joining the EPDA, she headed the finance function for a PR agency. 

Before starting her career in finance, Lisa worked as a qualified nurse for the NHS following the completion of her nursing degree in Scotland.

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