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Our people

The EPDA is managed by a number of freelance professionals and two part-time employees with many years of relevant experience, supporting an elected Board and their advisers. If you would like to get in touch with the EPDA, please email info@epda.eu.com.

Board

Veronica was elected EPDA President in 2020, and has served as a Board Member since 2017.

She was elected as president of the Malta Parkinson's Disease Association in 2012, a position she still holds.

Veronica was born in Malta but now lives in the UK. She graduated from the University of Malta as a speech and language therapist, and has a special interest in working with adult patients with acquired neurological conditions.

Veronica's mother has Parkinson's and she is involved in her mother’s care on a regular basis.

Danny was elected EPDA Vice-President in 2020, and has served as a Board Member since 2017.

He was born in the UK in 1963, and from 1980 to 2013 he worked as a tax professional for the UK's Her Majesty's Revenue and Customs. He was awarded an MBE for outstanding services to local government in 2008, after being diagnosed with idiopathic young onset Parkinson's in 2004.

Danny is a keen sportsman and an accomplished ultra-endurance athlete. He founded his own charity – Beat Parkinson’s – in 2013.

Lizzie has worked with the EPDA since 1992. She retired from her position as Executive Director in December 2018.

She remains a Board Member and has been appointed as an advisor commencing January 2019.

Val was elected as an EPDA Board Member in 2017.

She worked as a director with Parkinson’s UK from 2007 until 2019. Val’s career has focused on improving health and tackling inequalities, and she has held a range of roles in healthcare practice, management, research, journalism and policy.

Val has a background in nursing and public health, and a Master’s degree in Gerontology.

Josefa was was elected as an EPDA Board Member in 2020.

She is a physiotherapist, and her career has focused on creating and implementing specialized care for people living with Parkinson. Josefa has been the National Health Coordinator at the Portuguese Parkinson's Patients Association since 2006, and she founded more than 8 Parkinson's specialised services throughout the Association branches all over the country.

As an educator, clinician and researcher, she is currently finishing her PhD on Practicalities of Community-based exercise in Parkinson's at Radboud University Centre (The Netherlands), under the supervision of Professor Bastiaan Bloem.

Paula was elected as an EPDA Board Member in 2019.

She was CEO of the Parkinson's Association of Ireland from 2014 to January 2020. 

Paula has worked in the healthcare field since 2004, working with providing support services for people living with HIV and AIDS up until 2014.

Cvetka was was was elected as an EPDA Board Member in 2020.

She is a biologist, and has been the President of the Slovenian Parkinson's association Društvo Trepetlika since 2006. The main aim of the association is to empower and educate people with Parkinson's so they can keep in control of their condition, with a special focus on people with YOPD and carers.

Cvetka was a carer to her husband, who had Parkinson's, for 14 years.

Tsipi was was was elected as an EPDA Board Member in 2020.

Following her Parkinson’s diagnosis in 2005, she began painting and went on to do so professionally and to exhibit her works in Israel and throughout the world. Her personal story of coping and thriving through her art has inspired a series of exhibitions of works created by artists with Parkinson’s, which she has overseen and coordinated.

A longtime volunteer with the Israel Parkinson Association, she became a Board member in 2015, and she has been developing content and projects for the association ever since.

Gary was appointed as an EPDA Board observer in 2020.

He lives in Dublin, Ireland, with his wife, son and daughter. Gary spent most of his career working for a large multinational corporation in senior human resource roles. He was diagnosed with Young-Onset Parkinson’s Disease in 2011, at the age of 44, and ceased working in 2015.

Gary is now a patient advocate and champion of greater awareness of Parkinson’s, and has been a Board member of the Parkinson's Association of Ireland for two years, until early 2020. He is passionate about maintaining an active lifestyle to keep Parkinson's at bay.

Antonella was appointed as an EPDA Board observer in 2020.

She spent 25 years managing non-profit organisations at a national and international level, to advance equity and inclusion in the fields of health and disability. She has been CEO of the Italian Multiple Sclerosis Society until 2015, board member of the European Multiple Sclerosis Platform and the Multiple Sclerosis International Federation, as well as Director of Development and Communications at Italian Lega del Filo d’Oro.

In 2019 she joined Confederazione Parkinson Italia as a Board member and founded her own company Moretti Management Consulting, which works with non-profit associations, contributing to their growth and long-term sustainability.

Patricia was appointed as an EPDA Board observer in 2020.

She is a neuropsychologist and she has been working with the Spanish Parkinson's Federation (FEP) since 2017. In her current role as FEP's Project Manager in the Social Innovation and European Projects area, she works on: supporting Parkinson's research by disseminating news and promoting patients' participation; providing guidance and education for people with Parkinson's; producing quality informative content for the Federation's website and social media channels; and developing support networks for people with Parkinson's living in rural areas.

Executive Committee

Veronica was elected EPDA President in 2020, and has served as a Board Member since 2017.

She was elected as president of the Malta Parkinson's Disease Association in 2012, a position she still holds.

Veronica was born in Malta but now lives in the UK. She graduated from the University of Malta as a speech and language therapist, and has a special interest in working with adult patients with acquired neurological conditions.

Veronica's mother has Parkinson's and she is involved in her mother’s care on a regular basis.

Danny was elected EPDA Vice-President in 2020, and has served as a Board Member since 2017.

He was born in the UK in 1963, and from 1980 to 2013 he worked as a tax professional for the UK's Her Majesty's Revenue and Customs. He was awarded an MBE for outstanding services to local government in 2008, after being diagnosed with idiopathic young onset Parkinson's in 2004.

Danny is a keen sportsman and an accomplished ultra-endurance athlete. He founded his own charity – Beat Parkinson’s – in 2013.

Lizzie has worked with the EPDA since 1992. She retired from her position as Executive Director in December 2018.

She remains a Board Member and has been appointed as an adviser commencing January 2019.

Russell was appointed in July 2018, to take up his position as Director General in January 2019.

He is currently CEO of the Brussels office of Grayling, a global PA-GR consultancy firm, and in 2015 he became Chairman of PA for Europe.

Russell has worked within EU affairs since 1998; he therefore has a vast experience in lobbying and advocacy.

Team

Dominic began his employed position as EPDA Operations Director in January 2019. Prior to this, he began freelancing for the EPDA in 2000, although he has worked much more consistently with the organisation since 2012.

Besides his work with the EPDA, Dominic has more than 16 years' broad UK-based journalism experience. His previous clients have ranged from well-known consumer publishing houses to a host of trade and customer publishing companies.

Francesco began his employed position as Information Manager and Project Officer in November 2018. Prior to this, he began freelancing for the EPDA in 2013, working on different roles.

Francesco has a background in political science, communication and public health. His EPDA responsibilities include information and communication, projects support and website management.

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