IMPORTANT: EVENT CANCELLED
The Parkinson's Vision 2020 conference has been cancelled due to the rapidly-evolving COVID-19 situation in the UK and in Europe.
Please find below the official communication by the conference organisers:
"Dear Conference attendees,
It is with deep regret that we write to inform you of our decision to cancel the Parkinson’s Vision 2020 conference.
After closely monitoring the COVID-19 virus situation in the UK, and around the world, we believe that this is the prudent thing to do. Our decision is based on many different factors, including:
- Our concern for the health and safety of the conference attendees, particularly those with underlying health conditions that put them at increased risk for complications with the coronavirus.
- More than half of our speakers/presenters have been restricted (by their institutions and/or places of employment) from traveling internationally.
- UK government officials have stated that they fully expect the virus situation in the UK to get dramatically worse in the coming weeks.
We will issue a full refund of the conference tickets purchased.
We would like to take this opportunity to thank those who worked behind the scenes to ensure the success of this conference, our panel of speakers and presenters and all the organizations that have supported us along the way. We would like to express our heartfelt thanks to Andy Butler for his never- ending support and dedication to seeing this conference come to fruition and also the staff/faculty at De Montfort University and the EPDA for their unwavering support of this conference.
We would also like to thank all of you for supporting what was to be the first ever YOPD conference. Although we are bitterly disappointed that the conference is not going ahead as planned, the momentum behind highlighting the issues for those of us living with YOPD has been driven forward by the support of this conference through social media, media and other channels. We will be sure to keep you informed of any plans to hold this conference at a later date.
We wish you all the very best.
Parkinson’s Vision 2020 Conference Volunteer Team"
The video below was made by EPDA Board member physiotherapist Josefa Domingos and Parkinson's specialist and speech language pathologist John M. Dean to honor the Parkinson's Vision 2020 conference organisers.
Our awareness work for young onset Parkinson's
One of the EPDA strategic goals is to raise awareness of the complexity of Parkinson’s and the impact it has on people’s quality of life. A key way to us to achieve this ambitious aim is to challenge and correct – particularly through part of our advocacy work – current misconceptions that Parkinson’s is a condition that only affects older people. Indeed, a significant part of our strategy over the next few years is to advocate at EU level and more generally for greater recognition of people with young onset Parkinson’s (YOPD).
With this in mind, the EPDA had decided to actively support the Parkinson’s Vision 2020 conference as part of our World Parkinson’s Day activities in 2020. The conference – organised by small UK-based charity Parkinson's People – was to be held in Leicester, UK on 17 and 18 April 2020 and promised to be an important event that would focus specifically on the specific concerns, challenges and needs of people living with YOPD.
Articles from Parkinson's Life online magazine
- Young onset Parkinson’s: “How I look is not how I feel”