What is #UniteForParkinsons?
#UniteForParkinsons is a global Parkinson’s campaign – launched on 11 April 2017 by the EPDA and Parkinson’s UK. The campaign aims to raise unprecedented awareness of Parkinson’s around the world and to grow an active global Parkinson’s community.
In 2017, our aim was to engage the international Parkinson’s community in sharing a simple social media hashtag (#UniteForParkinsons). We wanted to prove there was an appetite to work together on a common cause, and when 9,000 people from 89 countries used the #UniteForParkinsons hashtag on 11 April 2017, we knew we had created something significant, and that there was potential to develop it into something bigger.
In 2018, we wanted to build on the 2017 foundations and create a bigger and better campaign. So, the EPDA and Parkinson's UK teamed up with Parkinson's organisations in Africa, Australia, India and the US, including the Michael J Fox Foundation and the World Parkinson Coalition to broaden the #UniteForParkinsons campaign scope and ambition. This time, we wanted to reach the general public and to turn #UniteForParkinsons into an impactful campaign to show the world what Parkinson’s truly is. We did this by creating an official #UniteForParkinsons promotional film using emotive video footage from people all over the globe. The #UniteForParkinsons film was seen 18,000 times, and we created a staggering 880,000 social media engagements.
Two concise reports outlining the results of the past two years are available for download here:
#UniteForParkinsons 2017 – Post-campaign analysis
#UniteForParkinsons 2018 – Post-campaign analysis
The 2019 #UniteForParkinsons campaign
The EPDA and Parkinson’s UK did not lead another #UniteForParkinsons campaign in 2019. There are a number of important reasons for this, and if you want more information please email firstname.lastname@example.org.
Nonetheless, the EPDA plans to develop further global #UniteForParkinsons activities in the future years. The EPDA had its six-year strategy plan agreed in November 2018, and building on the #UniteForParkinsons campaign’s previous successes forms part of that strategy.
As part of our commitment to raising awareness of Parkinson’s, the EPDA decided to promote two exciting Parkinson’s projects in 2019 that centre around World Parkinson’s Day – projects that we believed were a perfect fit for the #UniteForParkinsons hashtag. You can read more about these projects below.
INSIGHT into Parkinson’s 2019
The INSIGHT into Parkinson’s virtual summit is the largest global online event in Parkinson’s. From 11-13 April 2019, this online conference brought experts, academics, specialists, clinicians and, of course, people living with Parkinson’s and their carers together, with presentations, information and lots more available to all ticket holders from the comfort of their own homes. The EPDA was proud to be one of the Affiliate Partners of the INSIGHT summit in 2019.
Visit the INSIGHT into Parkinson's website to learn more what happened during the summit in April. You can also download a full presentation about the INSIGHT into Parkinson's Summit below.
INSIGHT Summit presentation
#UNITED for Parkinson’s campaign
#UNITED for Parkinson’s is a new and exciting awareness campaign, launched as a direct result of the #UniteForParkinsons campaigns in late 2018 by a group of young-onset people with Parkinson’s from across Europe.
The #UNITED campaign aims to build on the #UniteForParkinsons success by uniting committed Parkinson’s supporters from around the world who want to change common misconceptions about Parkinson's and to highlight the problems that come with the misrepresentation of people with Parkinson's. The campaign involves Parkinson's charities, policymakers, researchers and healthcare providers.
Read more and support the #UNITED for Parkinson’s campaign at www.unitedforparkinsons.com.
As part of the #UNITED for Parkinson’s campaign, a very successful conference focused on women and Parkinson’s, Parkinson’s EVE, was organised on 10 April 2019 in Leicester, UK.
#UniteForParkinsons in the future?
The EPDA is planning to lead further #UniteForParkinsons campaigns in the future – with 11 April 2020 being our ideal target at the moment to organise an important awareness and advocacy event in Brussels, involving major EU stakeholders and decision makers. Please continue to visit the campaign website throughout the year for further #UniteForParkinsons updates – and please help us keep the #UniteForParkinsons hashtag alive and well throughout 2019 and beyond, as this will help us in our efforts to support #UniteForParkinsons in the future.
If you have any questions, please email email@example.com.
Thank you all for your continuous support!
The EPDA would like to thank the following companies for their generous financial support in 2017 and 2018, which enabled the EPDA to promote the #UniteForParkinsons campaign across the world.