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Last updated: 14 May 2021

Parkinson's Life podcast: a voice for the global Parkinson's community

The EPDA website Parkinson’s Life – the online lifestyle magazine offering a voice to the global Parkinson’s community – launched its first podcast series in May 2019.

Designed to offer an uninterrupted space for people living with Parkinson’s, the podcast brings together two people to talk openly and honestly about the realities of life with Parkinson’s – and to share ideas about living well with the condition.

A second series – produced with support of a grant provided by the Boston Scientific Foundation Europe – was launched in May 2021. 

Listen to all the episodes of the Parkinson's Life podcast below!

Second series – 2021

How to sleep well with Parkinson's

The first episode, which was launched on Thursday 13 May 2021, brings together Ireland-based couple Cormac and Mary Mehigan, and Parkinson’s advanced nurse practitioner Brian Magennis. Cormac was diagnosed with Parkinson’s two years ago but has experienced active dreaming and sleeplessness for around six years; he and Mary discuss how these symptoms affect their everyday lives, and Brian shares his advice on getting a good night’s sleep.

“How to sleep well with Parkinson's” is available now on Apple Podcasts, Soundcloud, Google Podcasts and Spotify.

You can listen to the episode below – and please rate and review to help others find it!

Find out more about this episode.

First series – 2019

Parenting with Parkinson's

The first episode, which was launched on Thursday 16 May 2019, brings together Canada-based broadcaster Larry Gifford and American blogger and communications director Allison Toepperwein – both of whom have the condition and are also parents – to discuss family life with Parkinson’s.

“Parenting with Parkinson’s” is available now on iTunes, Soundcloud and YouTube.

You can listen to the episode below – and please rate and review to help others find it!

Find out more about this episode.

Caring for a family member with Parkinson's

The second episode, which was launched on Thursday 20 June 2019, Ola Larsson from Sweden and Ivona Cudova from the Czech Republic – who both care for a family member with Parkinson’s – talk about how taking on the role of carer has impacted their relationships, and why seeking support from people in a similar position is an important coping strategy.

“Caring for a family member with Parkinson’s” is available now on iTunes, Soundcloud and YouTube.

You can listen to the episode below – and please rate and review to help others find it!

Find out more about this episode.

Parkinson's and work

The third episode, which went live on 18 July 2019, Elisabeth Ildal from Denmark and Gary Boyle from Ireland – who both live with young-onset Parkinson's – discuss what it is like managing your working life with Parkinson's, connecting over their experiences of telling employers about their diagnosis and choosing whether to continue working or take a step back from a career.

“Parkinson’s and work" is available now on iTunes, Soundcloud and YouTube.

You can listen to the episode below – and please rate and review to help others find it!

Find out more about this episode.

Parkinson's assessment tools

The fourth episode, which went live on 19 September 2019, Portuguese physiotherapist Josefa Domingos talks with her patient Idelta Oliveira, who lives with Parkinson's disease. Together, they discuss how a new clinical assessment tool, the Parkinson's Disease Composite Scale (PDCS), changed the way they communicate in their appointments and enhanced Idelta’s treatment: thanks to the rating scale, Idelta’s experience can be discussed in a “common language” that all healthcare professionals understand.

“Parkinson’s assessment tools” is available now on iTunes, SoundCloud and YouTube.

You can listen to the episode below – and please rate and review to help others find it!

Find out more about this episode.

Women and Parkinson's

The fifth episode, which went live on 21 November 2019, features Parkinson’s campaigners and bloggers Omotola Thomas (UK), Sharon Krischer (USA) and Mariette Robijn (the Netherlands): together, they engage in a heartfelt and lively discussion on how a gender gap in knowledge and research affects the everyday lives of women with Parkinson's.

“Women and Parkinson's” is available now on iTunes, SoundCloud and YouTube.

You can listen to the episode below – and please rate and review to help others find it!

Find out more about this episode.

Getting creative with Parkinson's

The sixth episode, which went live on 19 December 2019, features rapper Walter J Archey III and artist Amy Mallett. Together, they discuss the impact creativity can have on the condition – and why sometimes getting out of your comfort zone allows you to “leave your Parkinson’s at the door”.

“Getting creative with Parkinson’s” is available now on iTunes, SoundCloud and YouTube.

You can listen to the episode – and please rate and review to help others find it!

Find out more about this episode.

Related reading

Articles from Parkinson's Life online magazine

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